Caretaking

This is the first summer that my boys are going to camp.

It’s a New York thing, and I am not originally a New Yorker. Where I grew up, summer was about hanging around, making yourself useful and finding a way to entertain yourself with a paper cup and a stick. But in Brooklyn, early teenagers attend camp. Soccer camp, tech camp, baseball, math, music camp: each one offers a focused specialty, a set of skills that will give your child an edge in the competition to come. I confess that, when camp finally seemed inevitable, I, too, was eying the summer as an opportunity to introduce my younger son to a new and notable talent – digital storytelling? film? – that he might become passionate about just in time for seventh grade, when every New York child must find some way to stand out from the tens of thousands of other smart, wonderful kids who are applying to the same high schools.

Instead, my sons are attending an all-purpose “summer experience” day camp in Brooklyn, where my fourteen year old is a Counselor in Training. Which means, far from distinguishing himself as a prodigy, the bulk of his days are spent taking care of seven year olds.

“It’s awesome,” he says.

Why? I ask him. Why on earth? What person, especially a teenage boy, would look forward to spending his free time with a large group of little kids?

It just is, he says. It’s fun. They have a lot of energy. They like to hang on him, and pull on his arms, and cling to his legs so he can’t go anywhere without them.

The CITs, as they are called, do get time to play dodge ball and other games (my son tells me proudly that his group won yesterday) and they also have time off – during Arts and Crafts and Swim for example – when they can go to their own counselors and do something supervised for a half hour or so. Their counselors, I am told, are also awesome. But my son usually chooses to hang out with the kids.

There is a boy who can’t swim because of an ear infection so he and my son shoot hoops and hit baseballs. A young man who is taller than his mother and a kid half his size: “You’d never believe it, Mom. He can hit the ball up to the ceiling. He’s amazing!” Or he hangs out in art class to see what they are drawing. “That’s great. That’s a beautiful picture,” he says mimicking himself as he wanders among them.

This is his choice. This is not Facebook, or texting, or any of the things he usually likes to do. He tells me, as if it just occurred to him, that he hasn’t logged onto Facebook in the past three days.

Who knew that my son would find his best summer experience, not in soccer or tech, but in caretaking? In New York City, we are conditioned to focus on self-improvement, every child for himself, with self being the center. We are transient, high-tech; we are busy. By the time school and guitar lessons and homework are done every evening, there is not a lot of time for service, or for taking care of others, or for anything except going to sleep.

But this summer, in this camp, my son is practicing love. We didn’t plan it that way, but I am so grateful. He is finding new priorities. He is celebrating others. And he is enjoying every minute of what he discovers.

And it is awesome.

The Time of Lizards

My father recently sent me a picture of my mother playing with a lizard. It was a Jackson’s Chameleon, green and black with three horns on its head. You might think how cute, or that she was visiting a zoo with children, or that she is an intrepid exotic animal lover. You might begin to question your assumptions, though, when I tell you that my mother has dementia, and the lizard was something she and her caregiver rescued from the side of the road.

Last night I had dinner with Kenny Fries, renowned disability expert and author of several books, most recently, The History of My Shoes and the Evolution of Darwin’s Theory. We were talking about disability, and Alzheimer’s, and a Father’s Day article in the New York Times, by Katy Butler called “What Broke My Father’s Heart” about a family’s struggle with stroke, dementia, pacemakers, and aging. We were both moved by the story. He had some issues, however, with the disability aspects, particularly with questions about quality of life, and who decides when a life is worth living or what the experience of that life is.

Kenny is a born disability activist. He was born missing bones in his legs. The majority of the rest of us, the “normal” ones, do not start life thinking much about disability. But we will all become disability activists eventually. Because, we are all on a life path that ends in disability. It is not other. It is, or will be, us.

This notion of disability as both ordinary and inevitable is part of what Kenny is writing about in his next book. Disability has entered my life in the form of my mother, just as it has for some five million people who have Alzheimer’s, and ten million unpaid caregivers who love them. These numbers are projected to explode, and I may become one of them. If I don’t develop Alzheimer’s, something else will happen to disable me (unless I fall off a caldera and am killed instantly). But if I do, I have my mother to look to for my future.

She has been losing her memory for twelve years. She can’t feed herself, dress herself, put together a sentence. She needs full time care. Yet she can enjoy her grandchildren, even if she doesn’t remember their names. She laughs. She apparently likes lizards.

Would I want this for myself in a perfect world? Would I prefer the alternative of “assisted death” that author Terry Prachett is advocating for?

One of the strategies that Kenny Fries espouses is for our society to turn away from the “illness model” where we try to cure disability or treat it in nursing homes, and give assistance instead to families who are trying to help their loved ones live quality lives. The strain that Katy Butler’s mother suffered, caring for her husband for seven years at the expense of her own health and life, doesn’t have to be the norm. It is something my father would do, though we are not at that stage quite yet, but not something any of us would want for him. For the moment, he has managed to get some help from home caregivers who amaze me with their joy and patience and competence. They are helping my disabled mother to live a life of laughter and hugs and Jackson’s Chameleons.

A life.

This Is Your Society on Oil

I know why BP is lying to us. But why are we lying to ourselves?

This oil spill has become a blot — not just a slick, deadly blot in our ocean, but a black spot on our vision so that we can no longer see the future, or the past, or even the present clearly. And it isn’t just the spill we can’t see, but oil itself.

BP, of course, is counting on this blindness. We can watch the oil blasting out of the broken pipe. But if we don’t measure it, if we drop dispersants on it so it hides out of sight, they know we will forget it, even as it is happening. We will question whether the dead dolphins and turtles that washed up on shore might be entirely unrelated, since they were not (yet!) obviously suffocated by oil. We will forget that the oil is already in the water, as the Governor of Florida did when, on May 12th, three weeks after the rig exploded, he called for a marketing campaign to tout Florida’s clean beaches. BP knows that it doesn’t matter that the chemicals they are dumping into the oil are full of cancer-causing compounds and neurotoxins that might kill 25% of all organisms in their path, not to mention move up the food chain, because we will forget, or not make the connection, even if we are all growing two heads 20 years from now. They have seen from the Exxon Valdez spill that they can spend nearly two decades fighting against paying the tab and win.

The future is on their side, because the future is too overwhelming for us to think about.

Then there is the past. Who cares? Looking back is merely whining and Sunday morning quarterbacking. Plus, it’s boring. We don’t really want to have to sift through and assign blame to all the deregulation and grossly mismanaged oversight by previous administrations that allowed this to happen in the first place. Even that sentence is exhausting to read. The problem is now. The Obama administration is now. We want the spill stopped, and they are the people who are responsible, even if this just dropped in their laps and they don’t have a clue how to do it. We want it to go away. We want it to have no effect, to never have happened; we want the oil that is continuing to impregnate our ocean after more than 50 days to never touch our white beaches, and if Barack “Whose ass do I kick?” Obama can’t do that, we will blame him for everything he has done, and everything he hasn’t done, both at the same time.

The problem with being blind to the past and the future is that the present is also too overwhelming, and too confusing, for us to see.

Consider Mississippi Governor Haley Barbour who blames the national press for scaring away the tourists who should understand, like he does, that the tar balls on the beaches “are no big deal.” What about Louisiana Governor Bobby Jindal’s protest against a moratorium on new permits and the suspension of already approved drilling projects because of a “potential” loss of up to 10,000 jobs? Just this morning, Louisiana Senator Mary Landrieu echoed that protest on the grounds that deepwater oil rigs “employ, directly, hundreds of people and indirectly thousands.” These are the voices of local representatives for the people whose beaches are being covered in oil “like chocolate,” “like pancake mix,” where all the fisherman are beached, communities are suffering, an ecosystem that exists nowhere else on earth is effectively dead. Yes, lost jobs are terrible, especially in this economy, especially for these communities. But in what formulation of “now” does it make sense to blame Obama for hurting people (whose lives are now being ruined by an oil spill) by trying to ensure some protection against future spills?

It’s like we are sitting in a car, driving down a road and we can see a brick wall in front of us. We are going to hit the wall. But this is the only car we have. This is the only road there is. We can’t think about stopping the car, about walking, about making a new road. This is our car, this is our road, this is the wall. And so we crash.

Why can’t we envision a life without oil? Why is oil such a given in our system, so much a part of our narrative, our identity, our way of understanding the world, that we can’t imagine letting go of it?

Oil, as energy, is a newcomer to the history of man. We only drilled our first oil well about 150 years ago. Electricity, cars, followed. A juggernaut to be sure; a systematic change in our way of life. But not an essential part of our being.

In fact, in that last 150 years, we have welcomed many new technologies into our daily lives – airplanes, television, telephones, computers, faxes, and personal electronics of all kinds – and we have also seen many become obsolete. My 12 year old has never seen a rotary phone except in a museum; his is the generation for whom “phone” is the thing in your pocket that also plays music, locates you through a satellite, and shoots video. He has never played a record, watched an eight-track, used a floppy disk, or typed on a typewriter. Televisions must now be HD, or have a converter box to function; there is a lively argument about whether, and for how long, printed books will continue to exist.

We live in an age where we are tumbling over ourselves in the quest for bigger and better and new. While there are many early adopters, many more of us have gotten so used to the breathtaking pace of technological advancement that we wait for the next generation, or the competition’s answer, before deciding what to buy. Everything becomes obsolete so fast.

Why not oil?

Why do we think instead:
This is how we do it.
This is how the world is.
This is how we’ve always done it.
There are no other jobs. There is no other solution. This is the only way.

No, no, no, and no.

But still we are stuck in our black blot, seeing neither past, present or future, suffocating, as surely as the pelicans are, in oil.

Why do we believe this is how it must be?

Also posted on The Huffington Post.

Wet, Not Bisqued

Ming just returned from a five-day ceramics workshop. He was learning about wedged coil building, which is something he has never done. He loves the wheel, and he is used to making four pieces in an afternoon; but last weekend, it took him four days to finish a single piece.

Every night when I talked to him, he said, I don’t know what I’m doing, I can’t get this done, the clay is too wet, the clay is too dry… He was beginning to face the fact that he might not have a single piece from the entire workshop. It was a new experience for him not to know where he was going, not to be comfortable as he was creating. And every day, the piece changed. Other potters would say, That looks good. Why don’t you stop? Isn’t it done? But it wasn’t.

It was a lesson about time. About how time is an ingredient too. I thought of my own memoir, coming out nine years after I lived it. After two years, the draft I had was too full of me and had to be slashed in half. After four years, the draft became a hybrid novel/memoir; after six years, a meditation on narrative that manipulated form so the memoir moved from third person into first as personal awareness was earned. Now, all of that artifice has fallen away – a gift of time – and the final book is tightly woven and startling to me: this week I read the page proofs, looking for typos and for sections that I will read in public, and I found myself, at times, in tears.

It was the gift of time that I found the courage, in now-forgotten moments over these last nine years, to write this way. It was the gift of time that I could see a bigger picture, a different angle, a universal experience in these little things that happened to me. Each morning, the artist wakes up and looks at the world from a new place. And finally finds himself in the right frame of reference to finish the biggest, most organic piece of work he has ever produced on the very last day of the ceramics workshop.

Lost in the Timeline

If the past has already happened; if it is an event or thing that is at least as far away from “now” as the split second we need to begin to describe it…

And if the future is a realm of possibilities that might manifest someday, but that exists now only as fretting and testing and planning, and if the future too is also something that is far enough from us that we can put words and consideration to it…

If both of these are defined by our ability to articulate them…

Then what is the present?

And what is memory?

Memory is the way we choose to describe the past, from the moment we are in now when we make that choice. A moment which is, of course, “future” to that past we are describing on the timeline we all believe in.

Memory is our only tool to understand and keep the past, whether it is our own memory, or another person’s, or a compilation of memories set down as history in a book.

But if we continue to move into the future, away from the past, and if our lives contain an always new and different constellation of events and perspectives as a result, then the past is always new because the future is always coming.

As this happens, memory changes.

And the past changes too.

Laughing with the Dalai Lama

The last time I saw the Dalai Lama (I love saying that), I had a date with my then-estranged husband to hang out in Central Park and listen to a talk on compassion with some 200,000 people. He didn’t show up (the estranged husband, not the Dalai Lama).

This time, I was sitting in a lunchroom at the Department of Education’s Hearing Office waiting for my son to be called to testify about being shot by a BB gun three times at school, and I picked up a paper out of boredom – I never read the paper – and there was a full page announcing the Dalai Lama at Radio City Music Hall.

What I remember most about the first time was the way that man laughs, how readily he does, and how his upper arms shake with joy. The ad was a sign – as unexpected as me with a newspaper in my hand – it was a gift, a call for peace, on what was turning out to be a very bad day.

Armed only with a texting cell phone, which is high tech for me, and one flickering bar of service, I texted my partner Ming from the lunchroom and asked if he wanted to go, and if so could he get tickets? There was a flurry of texts – which day, what time, which one could Ming reasonably get to immediately upon returning from a ten day trip to Australia and Singapore? He got tickets. But somehow in our truncated back and forth, and our New Yorkers’ assumption of options, we failed to realize there was only one public talk on Awakening the Heart of Selflessness, and what he had purchased were seats for the final in a series of six intensive teachings on the Commentary on Bodhicitta, which was delivered in Tibetan and translated.

We went, of course, because when you have the chance to hear the Dalai Lama, you go.

It was a dense teaching, with a heavy emphasis on how to meditate, offered by a jolly robed man sitting cross-legged on an enormous, ornate throne; a man, I guess I should be calling him His Holiness, who popped a maroon visor (which matched his robe) onto his bald head with a grin to read the scriptures. I enjoyed his English punctuations: “Generally speaking, vegetarian food is best.” “Mainly using common sense, isn’t it?” One of his messages was joyous effort, and amid his directions for how to cultivate a single point of attention, how to understand that appearance is not the true nature of reality, and how we are all too attached to “I,” this comment stood out:

“Just as the wind blows a piece of cotton, so shall I be controlled by joy.”

The wind has blown me all over the place recently, and I am so grateful to have a cheerful, maroon-visored reminder to relax into it and let it be joyful.